Genetic testing company 23andMe has filed for bankruptcy in the U.S., raising concerns about the fate of genetic data of millions of customers who used its at-home DNA testing kits to learn about their ancestry and health risks.
, Director of the Centre of Genomics and Policy and Associate Professor in the Department of Human Genetics at 91黑料网 is available to comment on this topic.
yann.joly [at] mcgill.ca (English, French)
The Chan Zuckerberg Initiative (CZI), The Leona M. and Harry B. Helmsley Charitable Trust, and the Klarman Family Foundation today announced $468,860 in collaborative funding to support ethical biomedical research and responsible data sharing for the Human Cell Atlas (HCA), an international effort to map all cells in the human body. The Centre of Genomics and Policy (CGP) at 91黑料网 will help guide and inform the approach and governance of data sharing to assist participating investigators to collect and share data.
The (GA4GH) has selected the (EUCANCan) as one of seven 2019 Driver Projects to advance and pilot standards for sharing genomic health-related data.
91黑料网 has helped develop a global resource that includes data on thousands of inherited variants in the BRCA1 and BRCA2 genes. The BRCA Exchange was created through the BRCA Challenge, a long-term demonstration project initiated by the Global Alliance for Genomics and Health (GA4GH) to enhance sharing of BRCA1/BRCA2 data.
By Vincent C. Allaire
Newsroom
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Human genome editing for both research and therapy is progressing, raising ethical questions among scientists around the world.
