91ºÚÁÏÍø News - centre of genomics and policy /channels/news_feeds/all/term/centre%20of%20genomics%20and%20policy/rss en Expert: What 23andMe’s bankruptcy means for users’ genetic data /channels/channels/news/expert-what-23andmes-bankruptcy-means-users-genetic-data-364469 <div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even"><p>Genetic testing company 23andMe has filed for bankruptcy in the U.S., raising concerns about the fate of genetic data of millions of customers who used its at-home DNA testing kits to learn about their ancestry and health risks.</p> <p><a href="https://www.genomicsandpolicy.org/en/team/profile/22/Joly">Yann Joly</a>, Director of the Centre of Genomics and Policy and Associate Professor in the Department of Human Genetics at 91ºÚÁÏÍø is available to comment on this topic.</p> <p><span><span>yann.joly</span> [at] <span>mcgill.ca</span></span> (English, French)</p> </div></div></div><div class="field field-name-field-primary-image field-type-image field-label-hidden"><div class="field-items"><div class="field-item even"><img class="no-float" src="/channels/files/channels/styles/wysiwyg_medium/public/channels/image/23andme-1200600.jpg?itok=V8Hhvi7C" width="160" height="80" /></div></div></div><div class="field field-name-field-published-date field-type-datestamp field-label-hidden"><div class="field-items"><div class="field-item even"><div class="custom-multi-date"><div class="multi-date first"><span class="label">Published: </span><span class="day">25 </span><span class="month">March </span><span class="year">2025</span></div></div></div></div></div> Tue, 25 Mar 2025 15:11:56 +0000 webfull 208217 at /channels 91ºÚÁÏ꿉۪s Centre of Genomics and Policy Receives Funding to Create Ethics and Governance Resources for the Human Cell Atlas Initiative /channels/channels/news/mcgill-universitys-centre-genomics-and-policy-receives-funding-create-ethics-and-governance-297695 <div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even"><p>The Chan Zuckerberg Initiative (CZI), The Leona M. and Harry B. Helmsley Charitable Trust, and the Klarman Family Foundation today announced $468,860 in collaborative funding to support ethical biomedical research and responsible data sharing for the Human Cell Atlas (HCA), an international effort to map all cells in the human body. The Centre of Genomics and Policy (CGP) at 91ºÚÁÏÍø will help guide and inform the approach and governance of data sharing to assist participating investigators to collect and share data.</p></div></div></div><div class="field field-name-field-primary-image field-type-image field-label-hidden"><div class="field-items"><div class="field-item even"><img class="no-float" src="/channels/files/channels/styles/wysiwyg_medium/public/channels/image/bartha_knoppers.jpg?itok=0nD7wNER" width="160" height="241" alt="" /></div></div></div><div class="field field-name-field-published-date field-type-datestamp field-label-hidden"><div class="field-items"><div class="field-item even"><div class="custom-multi-date"><div class="multi-date first"><span class="label">Published: </span><span class="day">11 </span><span class="month">June </span><span class="year">2019</span></div></div></div></div></div> Tue, 11 Jun 2019 19:53:05 +0000 webfull 149827 at /channels European-Canadian Cancer Network chosen as a driver project of the Global Alliance for Genomics and Health /channels/channels/news/european-canadian-cancer-network-chosen-driver-project-global-alliance-genomics-and-health-295197 <div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even"><p>The <a href="https://www.ga4gh.org/">Global Alliance for Genomics and Health</a> (GA4GH) has selected the <a href="https://eucancan.com/">European-Canadian Cancer Network</a> (EUCANCan) as one of seven 2019 Driver Projects to advance and pilot standards for sharing genomic health-related data.</p></div></div></div><div class="field field-name-field-primary-image field-type-image field-label-hidden"><div class="field-items"><div class="field-item even"><img class="no-float" src="/channels/files/channels/styles/wysiwyg_medium/public/channels/image/bartha_knoppers.jpg?itok=0nD7wNER" width="160" height="241" alt="" /></div></div></div><div class="field field-name-field-published-date field-type-datestamp field-label-hidden"><div class="field-items"><div class="field-item even"><div class="custom-multi-date"><div class="multi-date first"><span class="label">Published: </span><span class="day">7 </span><span class="month">March </span><span class="year">2019</span></div></div></div></div></div> Thu, 07 Mar 2019 18:44:03 +0000 webfull 147064 at /channels 91ºÚÁÏÍø helps to inform understanding of cancer risk /channels/channels/news/mcgill-university-helps-inform-understanding-cancer-risk-292989 <div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even"><p>91ºÚÁÏÍø has helped develop a global resource that includes data on thousands of inherited variants in the <i>BRCA1</i> and <i>BRCA2</i> genes. The BRCA Exchange was created through the BRCA Challenge, a long-term demonstration project initiated by the Global Alliance for Genomics and Health (GA4GH) to enhance sharing of <i>BRCA1/BRCA2</i> data.</p></div></div></div><div class="field field-name-field-primary-image field-type-image field-label-hidden"><div class="field-items"><div class="field-item even"><img class="no-float" src="/channels/files/channels/styles/wysiwyg_medium/public/channels/image/capture-brcaexchange.jpg?itok=ZJxjFWVk" width="160" height="88" /></div></div></div><div class="field field-name-field-published-date field-type-datestamp field-label-hidden"><div class="field-items"><div class="field-item even"><div class="custom-multi-date"><div class="multi-date first"><span class="label">Published: </span><span class="day">9 </span><span class="month">January </span><span class="year">2019</span></div></div></div></div></div> Wed, 09 Jan 2019 15:05:34 +0000 webfull 144701 at /channels Guidelines for human genome editing /channels/news/guidelines-human-genome-editing-257989 <div class="field field-name-body field-type-text-with-summary field-label-hidden"><div class="field-items"><div class="field-item even"><p><em><strong>By Vincent C. Allaire</strong></em><br /><a href="//www.mcgill.ca/newsroom/"><strong><em>Newsroom</em></strong></a></p> <p><img src="//www.mcgill.ca/newsroom/files/newsroom/baby_invitro_700x220.jpg" /></p> <p>Human genome editing for both research and therapy is progressing, raising ethical questions among scientists around the world.</p></div></div></div><div class="field field-name-field-published-date field-type-datestamp field-label-hidden"><div class="field-items"><div class="field-item even"><div class="custom-multi-date"><div class="multi-date first"><span class="label">Published: </span><span class="day">21 </span><span class="month">January </span><span class="year">2016</span></div></div></div></div></div> Thu, 21 Jan 2016 20:09:06 +0000 webfull 115426 at /channels