BEGIN:VCALENDAR VERSION:2.0 PRODID:-//132.216.98.100//NONSGML kigkonsult.se iCalcreator 2.20.4// BEGIN:VEVENT UID:20260710T185745EDT-9917jRuidN@132.216.98.100 DTSTAMP:20260710T225745Z DESCRIPTION:Le Groupe de recherche sur la santé et le droit vous convie à l a deuxième conférence annuelle sur la santé et le droit\, laquelle sera pr ononcée par Ma’n H. Zawati\, doctorant et membre du groupe. Ma'n examinera comment les biobanques populationnelles peuvent simplifier l'accès aux do nnées tout en protégeant les participants à la recherche. Un léger repas s era servi à 12h15. Les places sont limitées. Prière de confirmer sa présen ce en écrivant rghl [dot] law [at] mcgill [dot] ca.\nRésumé\n(En anglais s eulement) In research\, Canadian courts have maintained that participants are entitled to a 'full and frank disclosure' and that researchers' duties in that regard are as great\, if not greater\, than the duties owed by ph ysicians in the clinical setting. That being said\, the increasingly longi tudinal and international nature of research challenges the feasibility of maintaining such an expansive duty to inform. Take population biobanks as an example. These longitudinal studies are limited in terms of what infor mation they can provide to research participants during the initial consen t process. On the one hand\, they are increasingly encouraged to provide a ccess to their collections\, but on the other hand\, they are unable to pr ovide participants with “full disclosure” on the future use of their data at the time of recruitment. By re-examining conceptions at the heart of th e legal duty to inform\, this presentation will discuss ways in which popu lation biobanks can continue to streamline access to data while protecting research participants.\nLe conférencier\n(En anglais seulement) Ma’n H. Z awati (LL.B.\, LL.M.) is a lawyer and the Academic Coordinator of the Cent re of Genomics and Policy at 91. He is currently completing his Doctoral degree in law (D.C.L.) at 91 and is the Gradu ate Member of the 91 Research Group on Health and Law. Me Zawati is al so an Associate Member of the University’s Biomedical Ethics Unit since 20 13. His research focuses on the legal and ethical aspects of biobanking as well as the legal duties and liability of health care professionals in bo th the clinical and research settings. He has published numerous articles on issues such as access to genomic databases\, the return of research res ults/incidental findings\, the legal liability of physicians and the closu re of biobanks. Me Zawati has also presented on these topics in Canada and internationally. Recently\, the Young Bar Association of Montreal has nam ed him as one of its “Lawyer of the Year” awardees for 2014.\nUne demande de reconnaissance comme activité de formation continue(1\,5 h) a été dépos ée auprès du Barreau du Québec.\n DTSTART:20150202T173000Z DTEND:20150202T190000Z LOCATION:NCDH 316\, Pavillon Chancellor-Day\, CA\, QC\, Montréal\, H3A 1W9\ , 3644\, rue Peel SUMMARY:Population Biobanking\, Autonomy and the Duty to Inform: Streamlini ng Access to Data while Protecting Participants URL:/channels/fr/event/population-biobanking-autonomy- and-duty-inform-streamlining-access-data-while-protecting-participant-2410 50 END:VEVENT END:VCALENDAR